Ana has Oxidative Phosphorylation Complex I Defect. Ana's defect is a primary Mitochondrial Disease. Ana's only chance for a cure is through God. Please consider praying for Ana on a daily basis.
Friday, September 19, 2008
Day 6...
Ana did wonderful yesterday, but today we take a step back. In the wee hours of the morning her pedialyte was bumped up to 40cc's per hour (8tsp/hr). She did great for about 4 hours before she had complete backup. Ana got sick and we vented out almost 300cc's! Feeds have been put on hold for 4 hours and then we will start again at the 30cc per hour rate. Please keep praying that her tummy wakes up and starts doing its job. P.U.S.H.
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Hopefully this is one step back and two FORWARD!!! Hoping Ana is feeling much better this morning.
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