Dear God, Please comfort my baby. Give her peace and happiness... the kind of peace and happiness that comes from knowing that You are preparing a better place for her... a place where she can sing praises to You everyday on a street of gold... a place where she will never be sick... never need food through a tube... never need I.V. pain medicine... never need a wheelchair... never need to be comforted from disappointment... In the name of Jesus Christ I pray... Amen...
Ana has Oxidative Phosphorylation Complex I Defect. Ana's defect is a primary Mitochondrial Disease. Ana's only chance for a cure is through God. Please consider praying for Ana on a daily basis.
Wednesday, October 21, 2009
Sick...
Ana did well all day... She was in her pretty dress and walking out the door to sing with her choir on stage at church and she looked up at me and said, "Mommy, I am very cold... I think I am sick again." I took her temp and it was 102. She asked, "Am I sick?" I said, "Yes," and her little eyes filled with tears. I got on my knees and held her close to my heart while she cried. She was so disappointed she wasn't going to get to sing on stage. I feel so bad for her...
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Poor Ana, its hard to deal with so much at such a young age :(
ReplyDeleteYou and she seem to both be doing a great job overall. I hope she's feeling better soon! And Eithene is always so excited to think about heaven and "no broviac or tubey or TPN or braces..." Thank GOd for the hope we have through Christ!
Oh i am sorry! that breaks my heart to hear. Irelyn has had 3 fractures in the last month (2 femur breaks and 1 elbow) and it just shatters me when she says how she just wants to be able to walk and play with other kids. We are praying for you, Ana Maria, and your entire family.
ReplyDeletePoor little thing. I hate it when the sickness gets in the way of them doing the things they love. We had that happen several times the past few months and it is always so sad. Hope she is feeling better again soon.
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