Well, it has been a long week... tomorrow is Ana's cardiology appointment. She has developed a heart murmur and low blood pressure. We pray the murmur is nothing to worry about and that the low blood pressure is due to medications. Ana seems to be having more bladder issues and will require some more testing. We are in touch with the doctors in Cincinnati and they are going to talk with our local physicians about what we need to do. Unfortunately cathing may start sooner than we had anticipated. Ana's leg pain is no longer under control and we are trying Cymbalta this week... this drug is very hard to get through the tube... very frustrating for me.
November is quickly filling with appointments and I will list them below. Please pray for Ana. This disease is so hard to manage and there is no way to stop it. We are working on getting palliative care (nursing care) in the home, on top of the personal care she already receives. I am so tired... and with the severe mood swings the days get longer and harder.
- 10/30- Cardiology Appointment (EKG & Echocardiogram)
- 11/03- Eye Appointment in Charleston
- 11/05- Pulmonology Appointment in Savannah
- 11/06- PT & ST in Hilton Head
- 11/10- ENT Appointment in Charleston & Audiology Appointment
- 11/13- Meeting with the school district about services available
***Along with these she will have another sleep study, an ambulatory EEG, a bladder scan, and a Physical Therapy evaluation in Charleston.***
The LORD an Abundant Helper.
1 Praise the LORD!Praise the LORD, O my soul! 2 I will praise the LORD while I live;I will sing praises to my God while I have my being. 3 Do not trust in princes,In mortal man, in whom there is no salvation. 4 His spirit departs, he returns to the earth;In that very day his thoughts perish. 5 How blessed is he whose help is the God of Jacob,Whose hope is in the LORD his God, 6 Who made heaven and earth,The sea and all that is in them;Who keeps faith forever; 7 Who executes justice for the oppressed;Who gives food to the hungry.The LORD sets the prisoners free. 8 The LORD opens the eyes of the blind;The LORD raises up those who are bowed down;The LORD loves the righteous; 9 The LORD protects the strangers;He supports the fatherless and the widow,But He thwarts the way of the wicked. 10 The LORD will reign forever,Your God, O Zion, to all generations.Praise the LORD!