Ana has Oxidative Phosphorylation Complex I Defect. Ana's defect is a primary Mitochondrial Disease. Ana's only chance for a cure is through God. Please consider praying for Ana on a daily basis.
Monday, July 28, 2008
Sick...Sick...Sick...
Sage and I are both sick. I have now had laryngitis for 4 days! As soon as I can talk again I will start preparing for our trip to Cincinnati. Ana seems ok right now. I am extremely concerned about the leaking. Ana is now at a slower rate for 24 hours and a 24 hour vent. She is not happy about 24 hour tube feeds and keeps begging for a tubie break.
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