Update...

Ana started off doing great today. We started the morning at Kid's Life with our local homeschool group at church. Kid's Life ended at noon and we made our way to physical and speech therapy. About half way through therapy she began to complain of leg pain and by the time we got to the car she was screaming in pain and unable to put weight on her legs. This episode lasted until 5:00PM!!! I finally got through to the neurologist and they once again increased her meds. The downsides to increasing her medication are increased sleep and increased grumpiness. The Mitochondrial Myopathy seems to be getting the best of her. Please pray for her and for us as we go through each minute with her. We love her so much and we do not want her in pain. Just pray... pray continually...