The appointment went well. Ana needs SMO's, an ankle brace (pictured on right). He said later she may need AFO's, a brace that goes further up the leg. Most importantly she needs a Special Needs Stroller. She will have molds of her feet made Thursday for the SMO's. Pulmonologist appt on Wednesday is just a follow-up. We are waiting for a call in regards to the MRI. Her sleep study should be next week. I promise to keep everyone updated.
We got Ana's final report from Dr. K. She will be adding another supplement called Riboflavin within the next week. Please keep Ana in your prayers!!!