So, we are done in Boston and off to Maryland! Dr. N was absolutely wonderful and very passionate about his work! This trip was more than we expected it would be!! We do not have test results yet, but should in a week. Dr. N added a new medication to help Ana's stomach relax and allow more food intake. He can't offer more until the tests are back. I promise to keep you all updated!
Maryland is our next stop. Ana and her baby sister will see the allergist. Yes, Sage has the same type of Non-IgE mediated food allergy as Ana. Dr. M is very knowledgeable and has treated several kids with this type of allergy. However, it is rare and even more rare to have siblings as severe as Sage and Ana. I will update Wednesday about the allergist appointment. Thank you all for your prayers! We couldn't do this without the Lord by our side.
Ana has Oxidative Phosphorylation Complex I Defect. Ana's defect is a primary Mitochondrial Disease. Ana's only chance for a cure is through God. Please consider praying for Ana on a daily basis.
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